Thursday, 11 July 2013

Weary

My 10th maternal cousin, Yohan was born yesterday.
He died 52 minutes later.

I'd just found out on June 30th as we celebrated the 7th birthday of grandkid number 9 that he had Trisomy 13. He had an extra kidney, his brain wasn't developed properly, he had one nostril, and 24 digits.

I saw pictures of him. Such a beautiful baby. Long graceful limbs. His nose was malformed, but otherwise, he just looked so perfect. 16 inches, just under 3 pounds. He was due on my birthday, September 11.

Yohanan is Hebrew, meaning "God is merciful"

Is he really? Well, I'm weary from this "mercy".


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